FRAXA Research Foundation (U.S.A.)
If you are interested in taking up research on Fragile X Syndrome or interested in finding out what other research is being carried out this is a good starting point.
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Disability Research Unit Leeds (Sociology & Social Policy)
DRU is widely regarded as an international leader in disability research grounded in social model approaches that perceive disability as a form of institutional discrimination and social exclusion as distinct from being a product of physical differences between individuals.
Their website indicates that they welcome links with researchers in this area and that they are committed to a variety of research methodologies and collaboration with advocacy organisations and persons with disabilities.
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Health Service Journal
Online version of this UK weekly magazine, plus lots of useful links to other healthcare management and policy-related sites. This web site includes HSJ 1000, a user-friendly search engine that searches the content of 1000 health-related sites carefully chosen for their relevance to UK based health-care professionals. |
Joseph Rowntree Foundation
The Joseph Rowntree Foundation is an independent, non-political body which supports programmes of research and innovative development in the fields of housing, social care and social policy. The website contains several hundred research summaries which can be accessed by keyword, research category or most recent findings. |
Waisman Centre
Introduces the Waisman Center at the University of Wisconsin-Madison, one of 14 national (U.S.A) centres dedicated to the advancement of knowledge about human development and developmental disabilities through research and practice.
A quick visit indicates a vibrant research community with a a wide range of programs, activities and facilities.
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World Health Organisation WWW Home Page
While not specifically focused on mental handicap/intellectual disability issues, this web site does contain a search engine which one can use to further specialist enquiries |
EEEADS: “Educating Employers who Employ Adults with Down syndrome” A GRUNDTVIG Partnership Project 2
This project is funded by the European Commission and consists of 5 partner countries including Austria, Belgium, Ireland, Romania and Turkey.
Project Objective: To develop an Educational Booklet and CD to educate employers on supporting adults with Down syndrome in the workplace.
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Cochrane Collaboration
• The Cochrane Collaboration is an international non-profit and independent organisation, dedicated to making up-to-date, accurate information about the effects of healthcare readily available worldwide. It produces and disseminates systematic reviews (including the Cochrane Database of Systematic Reviews) of healthcare interventions and promotes the search for evidence in the form of clinical trials and other studies of interventions |
Norah Fry Research Centre
The Norah Fry Research Centre is one of the leading centres in the UK for research into services for people with learning difficulties. |
NUIG Disability Law and Policy Research Unit
The main aim of the Centre is to provide a forum and focus for disability related legal and policy research in Ireland.
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Tizard Centre
The Tizard Centre, University of Kent, is one of the leading UK academic groups working in learning disability and community care. The Tizard Centre is committed to consultancy, research and teaching that acknowledge diversity and address issues arising from social inequality. |
University of Ulster Developmental Disabilities and Child Health research Group
This group, within the School of Nursing of the Faculty of Life and Health Sciences, brings together researchers from a number of disciplines: nursing, psychology, social work and occupational therapy. |
The QOL Project
“QOL-WQ / QOL-WI” Instrument for measuring Quality of Life in the Workplace for People with Intellectual Disability
Available in the following languages: English, French, German, Finnish, Swedish, Portuguese, Hungarian
Also available in Hard Copy and/or CD Rom
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